Home!!

Trinity came home tonight around 5:30!! This is wonderful news for everyone. She's sound asleep in her bed and it feels good to be home!

Sunny Days!

Trinity and I are enjoying the sunshine coming through her window! It looks nice out there! Trinity is doing great! She had a really good night and we both got some sleep, which is always good. We had a few issues yesterday with vomiting and some headaches, but she seems to be doing much better this morning! This laying flat is very difficult for a kid that wants in her wheelchair and is ready to go visit all her friends here at Gillette! One more day of laying on her back and then hopefully we are good to go. Dr. Partington came by to see her last night. She has some swelling in her left leg and are not sure where it is coming from. Hoping nothing is fractured, but we are thinking it may just be fluid from surgery. He should be stopping by sometime today and going to talk with Dr. Walker about it. We would love the continued prayers, but are asking you to add a special little boy to that list. His name is Reece and over the past few days he's been fighting for his life. Please read the posts from his parents @ www.likeoliveshoots.wordpress.com. Pray, Pray, Pray!!!

My "Superhero"

Surgery went great! Dr. Partington was afraid that he would have to work with a lot of scar tissue, but he didn't and that made the surgery go a lot smoother. He's definitely concerned that we will be doing these often until she has a spinal fusion in the future. Not something we wanted to hear, but something we expected. She's been having spinal headaches that seem to be pretty painful, but they are staying on top of the pain meds and controlling the pain. The next 72hrs are the hardest for Trinity! She has to lay flat for 72hrs which helps with the headaches and so there is no leaking of spinal fluid. After 72 hrs she will be slightly raised until they know that she's having no issues with any leaking or added vomiting. With every surgery that Trinity goes through she amazes me everytime how strong and resilient she is! She's my "superhero"! She wore her Superman g-tube cover that was given to her from Will's mom Rebecca. Will is definitely missed, but always in her heart! We are blessed beyond measures with the outpour of love and prayers! Thank you!! Trinity is resting comfortably in her bed, so I think I should probably go to sleep myself!

Surgery in 2 Days

Trinity is scheduled to arrive at Gillette on Wednesday @ 8:30, with a 10:00 OR time. Not sure how long the surgery will take, but I'm guessing 2 hours. We will try to post on Wednesday after Trinity gets out of surgery and settled into her room. We appreciate all your love and prayers!