MRI Results

Yesterday Trinity had her MRI done and today we seen Dr. Haines, the Neurosurgeon, to get the results. Unfortunately it was not the news we were looking for. The piece of skull that they removed the last decompression has grown back and is blocking the spinal fluid from getting to a portion of her brain. This can cause problems with choking, breathing, speech, facial expressions, and eating. There was a chance this could have happened, but we were hoping it didn't. He would like to get this done sooner then later, but is willing to wait until after the first of the year. Shannon and I are going to talk this over and pray about what we should do. It is very difficult with the holidays only 2 weeks away. We are thinking that we will probably wait until after the first of the year so we can enjoy our holidays with family and friends, but we also have to consider our insurance (don't you love insurance!!). Please pray that we make the right decision, not for our sake, but for Trinity's. He just don't want any of her current symptoms to get any worse.

Yesterday we also seen the Urologist for the first time. They are going to do some testing on Trinity after the first of the year (dates still to be determined). This will involve some ultrasounds of the bladder and kidneys and some other testing that will determine if Trinity is voiding completely and not causing any damage to her bladder and kidneys. They will also be checking her bowels to see how that looks. She deals with constipation and we have to help her with suppositories of which they informed us that will never change and she will deal with this for the rest of her life. He wanted to make sure I understood that doing a catheter is never out of the question and that it will probably be likely in Trinity's future. He did a good job of informing me of the things that Trinity will deal with as she gets older and I appreciate his honesty.

The past two days have been emotionally draining. Just when things start looking good for Trinity we get the news of yet another surgery. Discouraged is my word for the day. I am using this blog to be honest with everyone so I hope you don't mind. Do you ever wonder how much a little body like Trinity's can go through? It don't seem fair that someone as small as her should have to go through yet another surgery.

On a lighter note, we took Aubree and Trinity to the Mall of America this past weekend. We found it odd that everytime we would walk into a store and out of the store the alarm would go off. After awhile we figured out that Trinity's shunt is magnetic and the alarms pick up on magnets. So Trinity will never be able to be a very good thief because she will always get caught!!