Good Evening! Sorry we didn't get you all updated last night, but because of how long it took for her to get out of surgery and recovery we didn't get settled in until late.
We started out the morning at about 3:30am and woke Trinity up around 4:20am to a nice bath with her pre-op shampoo. She did not think this was a very nice way to wake her up. We got to the hospital around 5:30am. They did all the pre-op questions and then took Trinity away to surgery around 6:30am. We waited anxiously to hear something all morning, finally around 11:15 we had made some contact with the nurse. She informed us that surgery did not get started until 10:25 because they had such a hard time getting an IV started in her. So with that being said, what we thought was going to be a 4 hour surgery turned into being almost 8 hours. The doctor came out around 2:00 and told us everything had gone great. They actually had to remove more then they thought they would. They removed the piece of skull that they had planned on and then found that the top two vertabraes were in the way causing a pinch on the stem of the brain. So they had to remove the top two bones to disconnect the brain stem. During the surgery they were fortunate enough to use a machine to scan Trinity after they were done to make sure that they removed everything that was causing interference. This helps to give them an preview of what everything will look like once the surgery is complete. Dr haines did confirm with us that she has one of the more severe cases of chiari malformation that he has seen.
The first night after surgery was a long one for Mirands. Once again Trinity was sharing a room with two other girls. Very ironicly, same as the last surgery, we shared a room with a 15 year girl with a rair disease that I had never heard of. Along with the disease she had a severe case of scoliosis. She has recently had a surgery to correct the 75 degree bend in her back. To put this in perspective, Trinity has a 38 degree bend in her back and looking at this on an x-ray it looks like a lazy letter C. At the age of 15 she weighed 59 pounds. The bend in her back was so severe she could eat very little because of the pressure her rib cage put on her stomach. Needless to say, she could use some prayers.
Today has been a fairly good day. Trinity was able to get out of ICU at about 1:00 today. She has been running a fever off and on all day and she has not been eating real well, but the doctor said that was to be expected. Dr. Haines stopped by this evening and said he thought everything was looking good, and he was pleased with her progression. Tonight I finally made Miranda go home to sleep and T sue and I are hanging out here in the hospital and life is good. Thanks to everyone for your thoughts and prayers. God has one again blessed us and we have so much to be thankful for.
6 comments:
Thank you for your post--I've been wondering and hoping all went well! Glad you feel good about things and we'll pray she's home very soon!
Hugs, Sarah and family www.caringbridge.org/visit/stellaturnbullturnbull
Praying for a quick recovery for Trinity and as little pain as possible. I hope you're all able to rest a little and keep up your strength. Love you all. Camie
Thank you for your post. We will pray that Trinity's recovery has no complications and that your days there go quickly.
Thank you so much for the update. Trinity was in our thoughts and prayers all day on Thursday. I am glad that everyone is in recovery mode now, and we will continue to keep your entire family in our prayers. I can't tell you how much respect we have for you and the strength and faith you have shown.
All our love,
The Timmermans
Thanks for updating. We are so glad that things went well. Hoping that continues!
We have been thinking of you guys. We miss you so much! Hugs from Michigan!! Love from The Gray Fam!
Post a Comment