Sorry for no update yesterday, but it was a long day and I didn't get to a computer until now. Things are going pretty good. Trinity got out of surgery around 5:00pm yesterday. The surgery went good with no complications. Trinity has to lay flat on her back for 72 hours. Last night this wasn't so bad because of all the pain meds she was on, but today has been a different story. She really wants to get up and especially be held, really hard for those of us that want to just pick her up. She had a long night of pain and many visits by the nurses. Sleep is always minimal in the hospital, but hopefully we can get some better sleep tonight. Dr. Partington checked in on her this morning and checked on her back. It is looking good with minimal drainage (the main reason for keeping her flat). He did say that she probably is having spinal headaches because of the way that she was positioned during surgery and also when you open and close the spine the spinal fluid gets confused as to where it is suppose to go. Because of the headaches she pulls at her hair, covers her eyes, and tosses her head in pain. Not fun to watch your helpless baby girl and not be able to help her.
Trinity was pretty excited to see her big sister today. Aubree and Nana brought her a big balloon and a stuffed snowman. Trinity also got a visit from a golden retriever named Trooper. He put his paws up to the bed and Trinity went nuts, she wanted to get out of the bed so bad and pet him.
I can honestly say that this is one of the BEST hospitals with wonderful staff. It is very comforting to know what great care your child is getting and to also know that there are so many kids with the same thing as Trinity rolling around the halls in their wheelchairs and walkers.
Trinity could use your prayers tonight and the days to come as it is going to get harder for her to want to lay flat. Also prayers that her headache and pain would diminish would also be appreciated.
Love~Trinity and family
3 comments:
Miranda, I can't imagine how hard it is for you to not pick your little girl up when she is in so much pain. I will be praying for all of you in the coming days and weeks.
Sharon
I have followed Trinity's blog from the very beginning. I am praying that she will be able to relax and remain calm and still--that reallydoes seem so long but it will be worth it for the quality of life for Trinity. Just wanted to let you know that other people are caring!
Whitney's Grandma
thinking of you all. I will have Whitney say a prayer for Trinity tonight.
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