Urologist

On Thursday Trinity had an appointment with her urologist. This was actually the first time that we had met him. Trinity had a urodynamic test done in December before her untethering surgery and that came back good, so they didn't want to see Trinity for another 6 months.

Dr. Vandersteen, urologist, is a partner with the other urologist that we have seen before at Shriners so it was nice that we didn't have to explain Trinity's situation all over again. He explained that there are a few different types of bladders and Trinity has one that has weak muscles on the outside causing her urine to constantly leak out and not strong enough to hold in her urine. This is not a problem at this time in her life, but when Trinity starts to get older and asks to get out of diapers he recommended at that time that we think about doing a surgery to tighten the muscle on the outside so the urine can not get out and she would have to learn to cath herself. This is defiantly something that we don't have to think about right now, but down the road. We are just happy that at this time she has only had one bladder infection in 2 years.

As for her bowel we are still trying to figure that out. Trinity has issues with constipation and we can not get it under control. We are using Miralax and suppositories and they both are not helping. The Miralax is not near effective because we put it into her bottle of Pediasure and since she don't eat a whole bottle at once she is not getting the full effect of the medicine. They want us to discuss the constipation with the GI doctor next month. An option that we have is to do a surgery that would help flush the bowel on a daily basis, but we want to try to figure this out without surgery if possible.

It was very enjoyable to have a doctor that don't want to play God with our daughter and knows who God is! He made the statement that after I asked the question, "What are the chances that Trinity would learn to urinate on her own when she is older and she won't need diapers or the surgery?" his response to me was that a miracle can happen, but God performs those! That statement is huge to us as so many doctors want to act like they can fix our daughter and perform miracles and really they can't perform the miracle, that is up to God!

We are really enjoying this nice weather and today we got to have a picnic at the park and the girls love playing at the park! Trinity loves being outside and it brings so much joy to our lives to watch her enjoy herself as she plays with Aubree and other kids around her. Really good Extreme Home Makeover tonight on TV that had a 6 year old boy with spina bifida. Hope you got a chance to watch it, the mom made the statement how much joy he brings to them and those around him, Shannon and I have the same feelings with Trinity.