Shriners Visit and Easter Weekend

On Friday we had our visit at Shriners where Trinity was seen by the Neurosurgeon and the Urologist. I will start with the good news that we have been able to take Trinity off of the antibiotic that she has been on to prevent urinary tract infections. They did a Urodynamic test on her. Most urodynamic testing focuses on the bladder’s ability to empty steadily and completely. Unfortunately the test was not completely accurate because it is very difficult to keep an infant from moving during the test, but the doctor felt like with this test and the ultrasound they did back in January, that Trinity has no issues right now with urinating and they will retest her in 6 months.

As for the Neurosurgeon, we are still up in the air on what is going on with Trinity. Over the past 2 weeks we have had some issues with Trinity vomiting. It can be everday or everyother. She has been losing weight also of which raises a red flag to the doctors. It could be a number of things going on so they need to talk with Trinity's regular Neurosurgeon (Dr. Haines) and see what he thinks. As of now Trinity has an MRI on the 22nd, but they would like to get it done sooner if at all possible. They also want to do a swallow study to see if it could be reflux, have her eyes checked to see if it could be her eyes, and do an x-ray to check her vocal cords. It could also be the brainstem causing these problems or her shunt. So I really can't tell you a lot other then we are just waiting on the doctors to decide what to do next. I know it is hard to tell from the pictures, but Trinity has lost some weight ever since her last surgery. I can tell when I put her diapers on and when she wears some of her 12mth clothes. Please pray for Trinity and that the doctors would be able to figure out what is going on.


Aubree and Trinity in their Easter dresses!!

We had a "Great" Easter weekend together as a family!! I don't know if you remember but last year we spent it in the hospital and Aubree was in Iowa. It was really nice here this weekend so we got to spend a lot of time outside. We took the girls to the park on Saturday and Trinity got to swing on the swings for the first time (of course we had to hold her), but she smiled the whole time!! We went to church Sunday morning, and never thought I would see the day where I was in a congregation of about 1100 people for just one service. Did I mention there were 7 different services?!? After church we had the pleasure of joining our landlord and his family for lunch. Aubree enjoyed playing with all the kids and I am pretty sure all the kids enjoyed Aubree!!

Hope you all had a blessed Easter weekend!!