Update/Pictures

Things are going pretty well for Trinity. She was suppose to have a checkup today, but she has a fever and a cold, are you surprised? (we sure aren't) Hopefully it is just a cold and nothing more, but we will see how tonight goes and if she is not better tomorrow we will take her in to see the doctor.

Trinity has amazed us with her recovery from surgery! She's doing GREAT and getting around just fine in her cart. She stopped taking pain relievers after Monday. I haven't got to see her back in almost a week because it still has the bandage on it, but there is no sign of leakage, which is great!

I wanted to post some pictures of Trinity from the hospital stay. One of the pictures is of Trinity in her bed and you can see the tree that she got from the family that donates them to the children in the hospital. We put it in her room and she loves looking at it at night when it is lite up!

Trinity Home

Trinity got to come home Sunday night. This was very exciting for all of us including Trinity. She loves it when she can sleep in her own bed and be in the comfort of her own home. I would have to say I was also pretty excited to sleep in my own bed! Trinity is doing pretty good, just a little pain here and there, but for the most part she's doing remarkably well.

So much love and support was shown to our family while we were in the hospital. We are very grateful to have such wonderful family and friends. Thank you so much for your prayers during the surgery and Trinity's recovery.

Day #4

Trinity has had a pretty good day today. At 5:00pm Trinity got to slowly sit up for the first time in 72 hrs. She started out in bed at different levels and then made her way to mommy's lap. It felt like holding her for the first time, really exciting. So far she's showing no signs of any leakage and doing great. She is taking a break right now in bed, but still a pretty happy girl. Last night Shannon and I got to see the incision and it looks great. Dr. Partington did a fantastic job and we are amazed at how clean and good it looks. We are crossing our fingers, but hopefully tomorrow she will get to go home! As long as there is no leakage and things are going good for her we should get to go home.

One final note: GO VIKINGS!!!!!!

Day #3

Trinity is doing pretty good. Today has been so much better then yesterday. Her headaches have pretty much gone away (we are guessing by the way that she has been acting today) and the pain seems to be getting better. We have had a few issues with some vomiting last night and today. They think it is due to the pain meds that she was on, so we are going to just try Tylenol for now. She's starting to get an appetite back, but it is taking some time. Dr. Walker (Orthopedic Surgeon) came in today to see Trinity. He feels pretty optimistic that if we get Trinity back into a brace after she heals it could help correct her scoliosis. He wants to see her on Monday if we are still in the hospital otherwise we will get an appointment made to see him soon. I pray that it will work so we can avoid surgery again for awhile. We also got to talk to a Dietitian today and found out that Gillette has a feeding clinic (Occupational Therapist, Speech Therapist, and a Dietitian) they will help us with Trinity's eating and her speech. This will be something we will look at doing after the first of the year.

Tomorrow Trinity gets to finally sit up for the first time in 3 days, we are all looking really forward to this! I wish I had a video camera here to show you just how strong Trinity is and how bad she wants out of her bed. She has been grabbing the bars of the side of the bed and pulling her self around the inside of the bed (from side to side). She's so ready to be able to sit up and do things other then just lay flat on her back. Not real sure when she will get to go home, but we are hoping for Sunday?!?!

Trinity got a Christmas Tree in her room today. It is about 1.5 feet tall and is decorated with playdough, cutouts, and some other toys. It has lights on it and decorations. A couple that had a child in the hospital over Christmas donates 35 trees to Gillette for kids that spend time in the hospital during the holiday season. We have it on the end of her crib and have the lights on. I will make sure to post a picture of her with her tree. Just one of the many things that this hospital and volunteers have given to Trintiy. So far she has gotten a tie blanket, baby pillow, and a tag blanket (because she got sick all over her other blankie). The nurses and staff are amazing here. Aubree got to do a craft last night with some other children that are in the hospital. She had a lot of fun doing it. We are very happy with our decision to switch to this hospital!!

Hopefully our next post will say "We are Home"!
Love~Trinity and family

Post-Operation

Sorry for no update yesterday, but it was a long day and I didn't get to a computer until now. Things are going pretty good. Trinity got out of surgery around 5:00pm yesterday. The surgery went good with no complications. Trinity has to lay flat on her back for 72 hours. Last night this wasn't so bad because of all the pain meds she was on, but today has been a different story. She really wants to get up and especially be held, really hard for those of us that want to just pick her up. She had a long night of pain and many visits by the nurses. Sleep is always minimal in the hospital, but hopefully we can get some better sleep tonight. Dr. Partington checked in on her this morning and checked on her back. It is looking good with minimal drainage (the main reason for keeping her flat). He did say that she probably is having spinal headaches because of the way that she was positioned during surgery and also when you open and close the spine the spinal fluid gets confused as to where it is suppose to go. Because of the headaches she pulls at her hair, covers her eyes, and tosses her head in pain. Not fun to watch your helpless baby girl and not be able to help her.
Trinity was pretty excited to see her big sister today. Aubree and Nana brought her a big balloon and a stuffed snowman. Trinity also got a visit from a golden retriever named Trooper. He put his paws up to the bed and Trinity went nuts, she wanted to get out of the bed so bad and pet him.
I can honestly say that this is one of the BEST hospitals with wonderful staff. It is very comforting to know what great care your child is getting and to also know that there are so many kids with the same thing as Trinity rolling around the halls in their wheelchairs and walkers.
Trinity could use your prayers tonight and the days to come as it is going to get harder for her to want to lay flat. Also prayers that her headache and pain would diminish would also be appreciated.
Love~Trinity and family

Surgery

We are currently at the hospital waiting to be admitted for surgery. We had to be here this morning @ 8:30 so Trinity could have a CMG and a ultrasound of her bladder before surgery. The CMG went good, but we won't know anything for sure until the urologist reviews it. The surgery is scheduled to start @ 11:45 and it is suppose to be about 3hrs long. Please keep her in your prayers and all the doctors and nurses. Aubree is staying with our friends, Amanda and Stephan today so I am sure she is enjoying herself! We will probably update later this afternoon when Trinity gets settled into her room.