Happy Spring!! I wish I meant that, but unfortunately it is still cold here and we still have some snow on the ground, but hopefully the fun, warm weather is just around the corner.
Lots of new things have been going on with Trinity. She had her teeth cleaned for the first time and it went great. They had to put her under for the procedure because of her vomiting, but her teeth came out looking nice and clean with no cavities or rotted teeth. This was a huge relief, we really thought her teeth were bad because of all the vomiting she does and we can never get a toothbrush in her mouth long enough to be effective.
On St. Patricks day Trinity got her new TLSO (brace). It is really uncomfortable for her, but because her scoliosis is getting so bad we have to do something to prolong any surgeries. She has done really well tolerating it.
They have also switched Trinity's formula to EleCare. This is a hypoallergenic medical food to help with the food allergy they think she has to the Pediasure. Unfortunately she will not take this through the bottle orally so without the bottle she really don't get anything orally. This has been really discouraging coming on a year of her having the G-Tube in July, we really thought we would have made some progress by now with her eating, but instead we have gone downhill. This is something we could really use some prayers on!
We had the pleasure of spending last week in Iowa with our family. It was really nice to be with them and nice to have Shannon there with us for the whole week. The weather was pretty good and the girls always love being with their grandparents! Now we are preparing for the baby to arrive in May. Hard to believe it is getting that close!
1 comment:
Nice to hear an update from you all! Is Trinity on the Vanilla flavored Elecare or the plain one? Ben has been on Elecare since we switched him from breastmilk about 6 months old and he still drinks it, but he has the vanilla flavor. Sometimes I add chocolate syrup for a change. I hope this helps her gain. Ben is gaining but not as much as they would like. Toddlers are not the best eaters anyhow and with all of the other issues these precious ones have to go through I am sure it is overwhelming to them. Wishing you a healthy, new addition to your clan! Hugs, The Pannecoucks
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