Everything went great Monday afternoon with the halo placement and the skin flap. The halo only ended up needing 4 screws (which is pretty good). She will only have one skin flap procedure and so far that has been healing really well. They started with a weight of 5lbs on Tuesday. They are trying to add 1 lb a day, but because of some symptoms that she was showing they decided not to add any weight today. Otherwise, they hope to add 1 lb a day until she's up to 1/3-1/2 of her weight. A couple times a day they check her neurological functions through simple tests of the eyes, facial muscles and movement in the arms, legs, toes, etc. These tests will help prevent complications like: pain and weakness in the neck muscles, swallowing muscles and tongue, pain and weakness in the eyes, and neuromuscular complications.
She has been a brave little girl! Below are some pictures to show you what she's been up to.
Love,
The Arthur's
1 comment:
You are all in our thoughts and prayers. Trinity is a super star, and it is my prayer that the next 2-3 months reveal many unexpected blessings and joys until you are all back home again. Lots of love, The Timmermans
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