5/7/08

Hopefully everyone is having a great week! We have been enjoying the sunshine by going to the zoo and the park.
Yesterday Trinity had a doctor appointment with the neurosurgeon. The doctor was very pleased with how well her back looks. She also checked her shunt and talked to me about the hearing test that Trinity failed. She looked over the report and felt that by reading it she feels that Trinity has Chiari Malformation II. She said that 90% of Spina Bifida babies end up with this and it is not unusual. She really don't want us to be concerned right now, but that they will check her again when she is around 6 months and see what things look like then. She will also probably do an MRI sometime between 6 months to a year of age.
We also met with some people from Early On. This is a program through Rochester Schools that will help Trinity with Physical Therapy and Occupational Therapy. They will also work with her on Visual Reception and Fine Motor skills. We can start as early as tomorrow, but with leaving on Friday we will probably wait until we get back from Iowa. The class will be twice a week in the classroom. There will be sometimes that they will come to the home and work with her also. We are really excited to have this opportunity for Trintiy.
We are getting really excited about coming back to Iowa. It will be a long trip for both the girls, but especially Trinity since she has never been on her back for that long. We have had many requests to see us when we are back and we hope that we will get to see everyone, just know that we also have to think of Trinity and that she can't have too much stimulation. There will probably be some days that we just hang out at our parent's homes. Shannon will not be joining us until Memorial Weekend.
Love~The Arthur's