Last week Trinity was seen by Dr. Gilmer-Hill (neurosurgeon). She had a concern with a few things. Trinity has been choking when she eats, her soft spot is kinda full, and she is losing some upper body strength. With that being said she requested to have an MRI done of her head and spine. She is about 99% sure that she has the Chiari Malformation II and would like to see how severe it is. The soft spot can be her shunt or it could be the cause of the Chiari. We don't know for sure what this means and what they will do to fix this. Next week we will meet with all the doctors from Children's in Detroit. They will also have access to the MRI and we can get a second opinion. Dr. Gilmer-Hill still has many connections at Children's and will work with the doctors there. We are still not sure when they will do the MRI, we were hoping to have it done this week, but because she has to have general anaesthesia, there are a few more steps to the process. Patience is something God is really teaching me through all of this, something I lack!! We will definitely keep you posted on the MRI and the doctor appointment next week.
On another note, we got to go to Iowa last weekend for the fourth!! Are we crazy, probably, but it was a good time and we love spending time with our family and friends. (Gas is cheap, ha ha!!) The girls did really good on the car ride there and home.
Trinity also started cooing (spelling??) this week. It is the cutest thing and there are times she will go on and on like she is trying to carry on a conversation with us. It feels so good to see her smile and giggle after everything her little body has been through. As a parent you hate seeing your child in pain, something positive is nice for a change.
I love these two pictures. Shannon went fishing on Lake Huron the other day and took these pictures.
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