Wednesday, July 16, 2008

Shunt Revision


We just wanted to take some time and update everyone on our current situation with Trinity. We are currently at Beaumont Hospital and Trinity has had surgery and is now in the Pediatric Unit. Yesterday we had a doctor appointment with many different doctors at the Spina Bifida clinic. They were concerned with her shunt and requested that a CT scan be done. After having that done Dr. Gilmer found that her ventricles were 2-3 times the size they were at birth. Shannon and I got a phone call yesterday requesting that Trinity come in right away in the morning for a Shunt Revision. We feel very greatful that we had the appointment yesterday and that the doctors noticed this. God knew what he was doing when he scheduled that appointment! If this would have gone on much longer Trinity could have ended up with too much pressure on her brain which can result in brain damage. She really was not giving Shannon and I any reason to be concerned, but they thought she probably would have in the next couple days. Basically the shunt is no longer in the ventricle so they need to go in and replace the catheter that will go into the ventricle(if any of this is making any sense to you guys). Her head has basically grown in size causing the catheter to fall out. After surgery Dr. Gilmer also found that the shunt had some blockage which required it to be replaced. Please keep our baby in your prayers. She is having some discomfort and pain. Trinity is also sharing a room with a 16 year old girl that had scoliosis (spelling??) surgery. Please pray for her also as she is having a lot of pain.
As of now Trinity will be here overnight. They will recheck her in the morning and go from there.
We will keep you updated on how things are going over the next couple days. We will also spend some time this weekend or next week updating you on our doctor appointment yesterday. It went really good and we got a lot of information.
Love~The Arthur's

8 comments:

Anonymous said...

Praise God that He is watching over Trinity and all of you! Thank you for updating everyone and for continuing to be an inspiration to so many people.

Lots of love!
Danielle

CureSMA4Stella said...

So glad the surgery went well and praying for pain control . . . hope you guys are home soon!
Love,
Sarah Turnbull and family

Unknown said...

Love you, Miss you, ALWAYS thinking of you guys. Trinity keeps showing her amazing strength. What wonderful parents she has, you guys are great!
XOXOXOXOXO

Aunt Megan said...

Trinity Sue is an amazing little girl, she is the true meaning of strength. You all are in my prayers and i hope for a soon recovery so we can see that smiling face again!!!

love you guys and give her and Aubree hugs and kisses

Liz and Will Timmerman said...

You are definitely in our prayers!

Love,
Liz

dotty said...

our thoughts and prayers are with you all.
much love,
dotty

marshaRN said...

Hey you! I've tried to leave a comment so here goes! I hope you are all recovering from your last visit to Beaumont. Trinity looks huge!Tell Aubree I said "HI!"
Take care. Marsha

Benjamin Anthony said...

Our thoughts and prayers are with you. I hope the doctors can manage Trinity's pain and keep her comfortable during the healing process.

Hugs,
Kati, Chris, and Ben Pannecouck