Hello to everyone! As the afternoon drags on and the day continues Miranda and I are feeling a little exhausted, but relieved. The surgery went very well and Trinity although in a lot of pain is doing well. She just finished dominating 6 ounces of formula. The doctor was a little concerned that her heart rate went to over 200 while she was being fed, so they are drawing blood to make sure everything is ok. The doctor thinks that her heart rate rising was due to being in pain because she was being moved around.
The surgery itself went very well, and was much needed from what doctor Gilmer said. She said that when she got inside the back of her head and neck she found that there was a membrane that had formed over a portion of her spinal column which was restricting the flow of spinal fluid to the 4th ventricle in her brain. I'm not 100% sure what all of this means or causes, but I know it was not good. The picture above shows with the dashed line exactly what part of Trinity's skull was removed. If you look closely at the picture you will see that there are two portions of the drawing that have diagonal lines on it. One is the Arch shape and the other is the small thin bone that you see that looks like a bridge across the spinal column. With these two bones gone her spinal column will have room to function properly with no nerve pinching or spinal fluid restrictions. This will also give the stem of Trinity's brain more room to reside and therefore function properly.
Thanks again for the prayers. We could really feel them this morning. This by far has been the toughest surgery to go through. She will be in the PICU for tonight and then hopefully moved tomorrow to the Peds. Tonight they will be checking on Trinity every hour, this will make for a long night. We will be sure to update if anything comes up. Trinity sends her smiles to all of you!!! :) (This picture was taken a couple days ago, she is such a happy baby!!)
5 comments:
You are all sitting here at grandma's working on the spare/junk room:) and we decided to check up on you! we are so glad to hear everything went well! you are in our thoughts and prayers! We love and miss you guys so much! Give hugs and kisses from us we love you!
JR,Kara,Trey,Masin and Grandma Phyllis
xoxoxoxoxo
Thanks for the update! We are relieved to hear that the surgery went so well. We will be praying for her recovery and that the pain will diminish. What a tough cookie!
You have been in our prayers all day yesterday, and you will continue to be until Trinity is home and pain free. Good luck with your move - that definitely gives you something to look forward to. Although Michigan will miss you!
Love,
The Timmermans
I simply can't imagine how hard this year has been on you, mom and dad. It's obvious that little Trinity is a very strong little girl, and it's also obvious where she gets her strength from! Thank you for updating. We will keep praying for Trinity's comfort and recovery, and for the rest of you as well.
Lots of love!
I was so relieved to hear that everything went well and so glad things could move forward even though she had the cold. Praying that today was a little less painful for Miss Trinity! I love the smiling picture of her and can't wait to see her again in person so I can see that smile!!!
Hang in there you guys--you are doing so awesome! So proud of you! :)
Love,
Sarah Turnbull and family
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