It's Been a Long Time!!

Wow, 6 months since our last post!! Fortunately nothing concerning has been going on with Trinity. She has her next spinal rod surgery scheduled for July 31st. We will meet with Dr. Walker on July 18th to determine the plan, whether he will do an extension in the rod or remove the lower part of the rod and replace it with a longer one. Please pray for God's guidance in his decision. She should only be in the hospital for 1-2 days if all goes well.

On another note, in May we met with her school for this fall. Can you believe she will be in kindergarten??? I can't!! God has blessed us with an amazing school district. They have worked out everything for her to start this fall: like providing lower tables, making sure the smartboard is lower, soap dispensers are at her reach, and the list goes on and on. I'm very impressed and at ease with this transition. Plus her sister will be there and riding the bus with her and that makes Trinity very excited! We also are going to look into dance too. She's very excited for that. She tells us all the time she wants to dance and sing, and I have no doubt in my mind that she will excel at both!

Happy 2013!!

Happy New Year everyone!!!
We had a great Christmas and New Year!! On December 18th Trinity had a lengthening done on her rod. Everything went great and she even got to come home that day, what a champ!!! She recovered and three days later we headed to Iowa for Christmas. The kids had a great time with all their cousins. Trinity also got her haircut, 12 inches! She has been asking us to cut her hair and donate it to Locks of Love. My sister is a hairstylist and we couldn't have thought of a better time to do it. She looks so much older and so cute! We are very proud of our kids and their generosity!
Last week Trinity got to play in the snow, with her siblings, in her new chair. We had a lot of fun.

We are looking forward to this New Year and all that God has for us! Can you believe Trinity will be 5 in about a month?!?!

Cure Pity!!

Something Shannon and I decided quite a while back was that we did not want people to have pity for Trinity. God made Trinity to be a very special little girl and despite her physical disabilities she's still just a little 4 year old enjoying everyday life! Trinity is disciplined just like her siblings and to some people this comes as a shock to them, "Why?" I'm not real sure. Gillette Children's Specialty Healthcare (where Trinity has all her care) is asking people to sign the pledge to "Cure Pity". This is to make people aware that kids and adults with disabilities DO NOT want pity! They want to be treated like you and me. Try to avoid staring at them or making comments that reflect pity. Educate your children, because they will have a time in their life when they will encounter someone with disabilities. This past weekend my sister-in-law shared with me how thankful she is that Trinity is in her kids lives. They don't see Trinity for her disability, but instead for her personality! If you would like to sign the pledge please go to: curepity.org

We are blessed to live in such an amazing school district! Trinity has some awesome teachers that work so hard with her. This week we had a progress review meeting for her and she's doing so well, especially in speech! We are so thankful for all their hard work with her!

This month represents the month 5 years ago we found out about Trinity's diagnosis when she was in my womb. I never thought we would be where we are at today, but I'm so thankful for every hardship and joy we have faced! It has helped our family become stronger and has showed me that my deepest desire is for My Lord, Jesus Christ!

Tracks 4 Trinity

Last Friday a benefit was held for Trinity. The benefit was to help us purchase a Action Trackchair. We not only met our goal but exceeded it!!! It was a very humbling experience for our family. Support came from every direction and a lot of people we had never met before. A lot of hard work was put into this and we are forever grateful to all the people that worked hard to make this a HUGE success!! The chair has been ordered and she should get it in about 6-7 weeks. We are super excited for all the new activities Trinity will be able to do with this chair. I encourage you to check out their website. You may know somebody that could benefit from one of these chairs. www.actiontrackchair.com

Trinity's Special Day!!

I wanted to share this moment on the blog so I would have it forever! Yesterday Trinity had a playdate with her friend Sophie. This is special because Trinity has never been invited to a playdate by herself! She enjoyed many things about this day, but one thing she talks about the most is playing with Barbies in the pool! See Aubree is invited to many different playdates, and Trinity always watches in the background as her sister leaves. This time Aubree watched as Trinity wheeled off for her special day! Thank you Anne for making this a special day for Trinity!! She's still talking about it today!

Home!!

Trinity came home tonight around 5:30!! This is wonderful news for everyone. She's sound asleep in her bed and it feels good to be home!

Sunny Days!

Trinity and I are enjoying the sunshine coming through her window! It looks nice out there! Trinity is doing great! She had a really good night and we both got some sleep, which is always good. We had a few issues yesterday with vomiting and some headaches, but she seems to be doing much better this morning! This laying flat is very difficult for a kid that wants in her wheelchair and is ready to go visit all her friends here at Gillette! One more day of laying on her back and then hopefully we are good to go. Dr. Partington came by to see her last night. She has some swelling in her left leg and are not sure where it is coming from. Hoping nothing is fractured, but we are thinking it may just be fluid from surgery. He should be stopping by sometime today and going to talk with Dr. Walker about it. We would love the continued prayers, but are asking you to add a special little boy to that list. His name is Reece and over the past few days he's been fighting for his life. Please read the posts from his parents @ www.likeoliveshoots.wordpress.com. Pray, Pray, Pray!!!